I just love back to school time…said hardly any PANDAS/PANS Parent ever!
It’s overwhelming to worry about your PANDAS/PANS child’s health in general. Put that PANDAS/PANS child in school, and you’re worried about another million things too. School is basically a giant, germ-filled Petri dish…ugh.
My son Jesse started 6th Grade yesterday! Omigosh, he’s getting so old and so big. I want him to stay little!!! We had a good summer with hardly any PANDAS issues (KNOCK ON WOOD!). My son attended a few camps (TV/Film Acting and Cartooning), went to the pool a lot, and visited a few amusement parks. We took a few fun day trips too. But now summer is over, much to Jesse’s dismay…and mine.
Last year, I put together the PANDAS School Daze Series to help you cope better at school (and hopefully sleep better at night). These posts have a lot of information in them…maybe too much info sometimes. LOL! Click on the links below to access the PANDAS School Daze Lessons:
Lesson 1: Talking to the School…information you can give to school personnel to explain PANDAS/PANS and other important talking points. (Includes a list of what I have given to teachers to help explain PANDAS.)
Lesson 2: Symptoms at School…how PANDAS/PANS might manifest during your child’s school days.
Lesson 3: Impacts on Learning…why schools need to care about PANDAS/PANS and how the condition may affect child’s educational career.
Lesson 4: Real Strategies to Use…actual strategies teachers and parents reported as having the best effects for PANDAS/PANS students.
Lesson 5: Making It Better…what parents said when asked what schools could to to make the school experience more positive for PANDAS/PANS families.
And here are a few highlighted School resources:
- The Understood web site has a lot of resources and tips . While it may not specifically cover PANDAS/PANS, there’s info about certain symptoms (ADHD, anxiety, etc…) and great tips for IEP/504 Meetings.
- I highly recommend Beth Maloney’s books for educators/school staff (I gifted our school with copies): Saving Sammy: A Mother’s Fight to Cure Her Son’s OCD
and Childhood Interrupted: The Complete Guide to PANDAS and PANS.
- Also, be sure to visit PANDAS Network’s School Section for great info and handouts for educators.
If there is a specific topic that you would like to see me cover or question you need answered, contact me here. I’m happy to add to the PANDAS School Daze series. You can always search the blog with keywords/tags (i.e. “school”) to find specific information. Or share your own great PANDAS/PANS school tips by sending me a message. Also, being back in school may inspire some reasons PANDAS Sucks. Simply click here to submit your reason(s) PANDAS Sucks when it comes to school or in any way.
I am hopeful that my son’s 6th Grade Year is going to be awesome and very, Very, VERY healthy! I hope the same thing for all the PANDAS/PANS Kids. Good Health and Healing for Everyone!
Tell us why YOU think PANDAS Sucks. Click here.
We post these reasons in a blog series.
Want to send a message to Sarah? Click here.
Sarah is a PANDAS Mom to her awesome son, Jesse. She spends much of her time on Facebook, making to-do lists, and listening to music, especially Depeche Mode. She drinks a lot of coffee, likes a good red wine, and has been known to hide chocolate in her pantry. Sarah really thinks PANDAS Sucks (the autoimmune disorder, NOT the bears!). PANDAS Sucks exists to tell the collective story about PANDAS/PANS. Sarah wants to empower other PANDAS Parents and let them know they’re not alone. See also Facebook, Twitter, and Pinterest.
Note: Please do not ask for doctor referrals or specific medical advice. This blog/web site is for info and support purposes only. I’m not a doctor.