I know I send out lighthearted calls from time to time asking you to share your reasons why you think PANDAS Sucks. I tell you to vent & gripe & bitch & that it is all anonymous. And then you respond…thank you!!!…and I read your very sad messages and just want to cry. None of our kids deserve any of this awfulness. THANK YOU for trusting me with your stories, which is an honor for me. And THANK YOU for being part of the PANDAS Sucks Movement to tell the world what our reality is and what PANDAS is really like via this Blog. I also truly believe that part of the healing process for our children and for us too is to tell our stories. And it totally counts if we can only tell them to ourselves. You should only ever share what you are comfortable sharing and what feels okay to you. But just know that you cannot numb or get rid of the dark without numbing and losing all of the light that is in your life too. Each of us deserves happiness in our lives and full recovery for our babies! Yes!
I’m not a big hugger, but I want to hug you all. I can’t possibly do that obviously, but let’s pretend. Here is your very own cyber hug from me to you: ((((((((((( INSERT YOUR NAME HERE ))))))))))) ❤️❤️❤️❤️❤️
Winston Churchill said, “If you’re going through hell, keep going.” So KEEP GOING!!!!!!!!
Do you want to participate in the upcoming special Your Words School Edition? Simply click here and complete the sentence “PANDAS Sucks At School Because….” I’ll be publishing the post on June 15th. Or you can submit any reason you think PANDAS Sucks because there are so many. Want to be a PANDAS Sucks guest blogger and tell your story more in-depth? Click here (and don’t worry–I’ll help you write the blog.)
Again, THANK YOU to everyone that reads this blog and participates in telling the world what PANDAS/PANS is really like…PANDAS Sucks!!!
Tell us why YOU think PANDAS Sucks. Click here.
We post these reasons in a blog series.
Want to send a message to Sarah? Click here.
Sarah is a PANDAS Mom to her awesome son, Jesse. She spends much of her time on Facebook, making to-do lists, and listening to music, especially Depeche Mode. She drinks a lot of coffee and has been known to hide chocolate in her pantry. Sarah really thinks PANDAS Sucks (the autoimmune disorder, NOT the bears!). PANDAS Sucks exists to tell the collective story about PANDAS/PANS. Sarah wants to empower other PANDAS Parents and let them know they’re not alone. See also Facebook, Instagram, Twitter, and Pinterest.
Note: Please do not ask for doctor referrals or specific medical advice. This blog/web site is for info and support purposes only. I’m not a doctor.
Have something you want to say? Send a message Click here.