PANDAS School Daze: PANDAS/PANS and School Days can leave you Dazed!
It’s that time of year again. Time for SCHOOL, which is a 6-letter word that can elicit many 4-letter words from words from PANDAS/PANS Parents. Words like %#@$ and #^@* and especially @$*&!!! Ha ha!
I wanted to highlight a really GREAT, NEW book for back-to-school time: PANDAS and PANS in School Settings: A Handbook For Educators by Patricia Rice Doran. The book is by an awesome PANDAS Parent and it has some other super cool Parent contributors (Moi included!) along with other expert advice. You can purchase a copy of directly from the publisher here. The book is available for shipping TODAY, August 18th, 2016. I received an advance copy and highly recommend it for parents and schools. It reads very well and has a ton of tips and good information about navigating school with PANDAS/PANS. This book is a great tool for PANDAS/PANS Advocates everywhere. (Watch for PANDAS Sucks to write more about this book and do a giveaway very soon! )
You can also pick up the NEW book PANS, CANS, and Automobiles: A Comprehensive Reference Guide for Helping Students with PANDAS and PANS by Jamie Candelaria Greene. It also has some terrific information about PANDAS/PANS and lots of detail. 🙂
And PANDAS Sucks has a previously published School Daze series to help you with getting through the ups and downs of the school year with your PANDAS/PANS kid.
Lesson 1: Talking to the School…information you can give to school personnel to explain PANDAS/PANS and other important talking points. (Includes a list of what I have given to teachers to help explain PANDAS.)
Lesson 2: Symptoms at School…how PANDAS/PANS might manifest during your child’s school days.
Lesson 3: Impacts on Learning…why schools need to care about PANDAS/PANS and how the condition may affect child’s educational career.
Lesson 4: Real Strategies to Use…actual strategies teachers and parents reported as having the best effects for PANDAS/PANS students.
Lesson 5: Making It Better…what parents said when asked what schools could to to make the school experience more positive for PANDAS/PANS families.
For even MORE info on PANDAS/PANS and School, check out these sites:
- Educators Page on Kentucky PANDAS/PANS Support site
- School Resources Page on the New England PANS/PANDAS Association site
- School Page on the PANDAS Network site
I will actually be homeschooling Jesse for 7th grade. It was the best decision after his multiple strep infections last year led to a major exacerbation and need for IVIG. He missed so many weeks of school last year, and we had several meetings before we realized he was in an exacerbation versus a flare…Mom Guilt galore. We actually started homeschool back on August 1st. I’ll be writing more about homeschool/school and still plan to write about our IVIG process. I have a few more tricks up my sleeve that are coming soon too. Stay tuned. 🙂
Here’s hoping that your child’s school year is pleasant and stays 100% strep-free, myco p-free, and ALL-illnesses-free. Keep Going! <3
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Sarah is a PANDAS Mom to her awesome son, Jesse. She spends much of her time on Facebook, making to-do lists, and listening to music, especially Depeche Mode. She drinks a lot of coffee and has been known to hide chocolate in her pantry. Sarah really thinks PANDAS Sucks (the autoimmune disorder, NOT the bears!). PANDAS Sucks exists to tell the collective story about PANDAS/PANS. Sarah wants to empower other PANDAS Parents and let them know they’re not alone. See also Facebook, Instagram, Twitter, and Pinterest.
Note: Please do not ask for doctor referrals or specific medical advice. This blog/web site is for info and support purposes only. I’m not a doctor.
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