This is the first installment in the newest PANDAS Sucks Your Words series: PANDAS Silver Linings. This series is based on the idea that even with all the bad stuff of PANDAS, good stuff still happens. As Brené Brown says, “Numb the dark, and you numb the light.” The PANDAS Silver Linings help us find the Light in our Dark days. (Read more about the start of this series here.)
I asked you to send in your PANDAS Silver Linings, and you did. The PANDAS Silver Linings can be a life lesson, a favorite quote, a thank you to somebody that helped you, a celebration of a recovery milestone, or something that just made you smile. The PANDAS Silver Linings will be different for everybody. Read more about PANDAS Silver Linings and submit yours here.
I’m happy to start off the series with a PANDAS Silver Lining from my friend Molly since she inspired this series. Thank you Molly! <3
My PANDAS Silver Lining Is…friends. Friends I have never met. Friends who have become like family and are part of our village. ~Molly O’Hea Kaiser
My PANDAS Silver Lining Is…when you are in a crisis what truly matters comes sharply into focus – the rest just fades away. I posted this at the beginning of our journey before I even knew what we were dealing. Even though we are in a much better place now this awareness still gives me strength and perspective. ~Christine Uliki
My PANDAS Silver Lining Is…being able to relate to, and to understand, my own PANDAS patients on a deeper level. ~Haley Wens
My PANDAS Silver Lining Is…I am not the same person I was before PANS took my child. I seriously believe every shred of shallowness has been sucked out of me (a good thing). I no longer care about looks, keeping up with the neighbors, reading about superficial things, etc. Now I see and live for things that are genuine. People that have truly good hearts, health, spirituality…the raw real stuff of life. I now see bare bones essentials as true blessings. No time for anything else. This journey has changed me forever. “A mind that has been stretched by a new experience can never go back to its old dimensions.”- Unknown ~RW
My PANDAS Silver Lining Is…that the journey to recover my two kids from PANDAS lead me to an amazing friend that has become like family. I met one of my closest and dearest friends when we journeyed from Michigan to Austin, TX. We initially met online as we were both researching how to get our kids better, and when we visited Austin to see a doctor, we met in person for the first time. ~Julie
My PANDAS Silver Lining Is…relishing our daughter’s “normal” days as the most beautiful and happiest days life can bring. ~Chicago Dave
My PANDAS Silver Lining Is…that as a teacher of special needs, I’ve learned so much from my experience with my child(ren) with PANDAS. I know how it feels how to sit at both ends of the IEP table. I know how it feels to go through hell at home with your own child. (!t’s a lot more draining at home than it is at school.) I’ve learned how to be a better teacher because of PANDAS. ~Vanessa
My PANDAS Silver Lining Is…the wonderful friends that we have and have shown their awesome support during this difficult time. My son’s pediatrician’s office has also been fantastic and we hope they are learning from us and can help future cases. ~LR
My PANDAS Silver Lining Is…that it has taught me not to take anything for granted. A good day has an entirely different meaning now, and the petty stuff doesn’t matter. ~Traci Andrews
My PANDAS Silver Lining Is…I’m celebrating the fact that at 5 months post-IVIG, Jesse is holding steady and doing very well. And he has not gotten sick at all during this time. WOOHOO!!! Usually by now, we’ve lost any IVIG gains because he got sick. Three cheers for the April IVIG versus his other November ones. Hooray! Hooray! Hooray! ~Sarah
My PANDAS Silver Lining Is…I’ve made some really great friends on this crazy PANDAS ride. Women and Men that I truly adore. <3 ~Sarah
My PANDAS Silver Lining Is…I’m happy that I can use my creative skills to help others stuck in this PANDAS/PANS awfulness or darkness. This blog and my other creative stuff helps me, and I hope it helps you too. It’s my pleasure to do this work. It helps me find my Light in all of this Dark. 🙂 ~Sarah
My PANDAS Silver Lining Is…that even though I wasn’t crazy about the idea of homeschooling this year, I know that it is keeping my son from being exposed to a lot of germs. I also recognize that I am lucky to be able homeschool. ~Sarah
Thank you to everybody that participated in this first installment of what I hope will be a very enLIGHTening series. Since it’s a brand new series, I feel like I should hit a champagne bottle against the blog or something. Instead, I’ll just hit Publish and hope that this article helps you find some Light if your day is Dark.
PANDAS will always, always Suck, but sometimes good things WILL happen. It’s nice to take a moment to acknowledge the good stuff and inspire other people by sharing good news and giving hope. Share your own PANDAS Silver Lining here. And you can also complete the sentence “PANDAS Sucks Because….” if you’d prefer. (PLEASE NOTE: If you submit a PANDAS Silver Lining or PANDAS Sucks Because… reason by September 24, 2016, you’ll be entered into the current BOOK GIVEAWAY. Good Luck!)
Thanks again and thanks for reading!
Tell us why YOU think PANDAS Sucks. Click here.
Have YOU found a PANDAS Silver Lining? Click here.
Read the full YOUR WORDS series here.
Want to send a message to Sarah? Click here.
Sarah is a PANDAS Mom to her awesome son, Jesse. She spends much of her time on Facebook, making to-do lists, and listening to music, especially Depeche Mode. She drinks a lot of coffee, likes a good red wine, and has been known to hide chocolate in her pantry. Sarah really thinks PANDAS Sucks (the autoimmune disorder, NOT the bears!). PANDAS Sucks exists to tell the collective story about PANDAS/PANS. Sarah wants to empower other PANDAS Parents and let them know they’re not alone. Also see PANDAS Sucks on Facebook, Instagram, Twitter, and Pinterest.
Note: Please do not ask for doctor referrals or specific medical advice. This blog/web site is for info and support purposes only. I’m not a doctor.