Happy New Year! Happy New Blog!
Well, it’s the same blog…but PANDAS Sucks has a new look! New Year. New Look. Same Blog.
I invite you to take a look around the new PANDAS Sucks design. Please do me a favor and if you see any major glitches, let me know. I tried to troubleshoot as best I could, but there will likely be something I missed. You can always send me messages about articles, features you’d like to see, a new article or news story, or tell me blog topics you’d like me to cover. Or just say hi.
If you’re on your phone, you’ll notice that the design is very mobile-friendly. You can either scroll through the entire front page or use the menus at the top where the 3 lines are located above the masthead and below. Just touch the lines and the menus will expand down in a cascade. But pretty much everything is also accessible if you just scroll through the blog on your phone or device from the top menu down to the footers. Certainly it is easy to navigate on a computer or laptop too, and the site is verified and secured.
With the new magazine format, the Categories will help you easily find stories and topics. The categories are listed in a menu at the top and in sections on the blog down the page and at the right side. I may add new Categories as we expand post topics, but here’s a rundown of the current Categories:
- MY WORDS are my personal blogs that I write. I almost named them MY “RANTS” but the WORDS won. I do get up on my soapbox now and then as y’all know. This section is also where you’ll find articles about my own PANDAS journey with my son Jesse.
- ADVOCACY/AWARENESS has articles about all the ways to be a great advocate for PANDAS/PANS. You’ll find posts about increasing Awareness here too.
- PANDAS SUCKS BECAUSE is our long running series where YOU send in the reasons PANDAS/PANS Sucks, and I publish them. We’ve shared 343 reasons with the world so far…only about a million more to go. Click here to participate.
- PANDAS SILVER LININGS is the newest series where we look for the Silver Linings in PANDAS/PANS. YOU send in the Light you find in your Dark Days. Click here to share.
- SCHOOL is an easy way to access blogs and series that have tips about PANDAS/PANS in education settings, which includes my PANDAS School Daze series.
- YOUR WORDS-GUEST BLOGS is a place for…Guest Blogs. It is my pleasure to provide space for YOU on this blog so PANDAS/PANS Families can tell their stories. It might be your PANDAS/PANS story…it might be your very own “rant”. LOL! I’m happy to help you write your Guest Blog, and I’ve created a new form for YOUR WORDS here.
You might notice that things are very focused on YOUR participation in PANDAS Sucks going forward. I will still write my rants (I promise! Just try and stop me! LOL!). But I truly believe that part of the healing process for our children, and for us too, is to tell our stories and share our thoughts/feelings. The world needs to know what PANDAS/PANS is really like. YOU can help me explain it. It’s easy, and anything you write can even be anonymous if you are concerned about privacy. And all of this helps us support each other too. We’ve been there. We’ve done that. You can do it too! Yes you can!
You’ll see a Sidebar on the right side of the blog. Here you can access all of the PANDAS Sucks social media: Facebook, Instagram, Twitter, and Pinterest You can also Search the site, find Contact Forms to send me messages and Your Words, and read Popular Posts. Also, you can now sign up for PANDAS Sucks News and Updates on the web site. Just look for the red Subscribe button on the site.
I have added few new Pages at the top of the site. As always, you can read about me in the ABOUT section. Click CONTACT FORMS to send me a message, and the series contact forms also cascade down. In WHAT IS PANDAS/PANS, there is info about the conditions, symptoms, diagnosis, and treatment. Under RESOURCES, you’ll see tools to help with Advocacy/Awareness efforts, which I will be expanding soon. There’s Articles, Web Sites, and Support Groups too. (Want to list your Support Group on PANDAS Sucks?.. let me know here.) As always, I honor PANDA BEARS on my site too just in case there’s any confusion by site visitors. I hate PANDAS not pandas!!! (I kinda hate all pans though since I don’t like to cook. I never get tired of that corny joke. haha)
I also added an AMAZON STORE. This is just an easy way to list everything together that may be a helpful for PANDAS/PANS families. I’ll be adding more items soon. Do you have any books or other items that are must-haves? Send me the links here, and I’ll add them to the Readers’ Suggestions. Any funds I generate as an Amazon affiliate will go back to maintaining this blog/web site. Everybody likes to get everything for free. I can assure you that there is nothing in PANDAS/PANS Advocacy that is free. This stuff ain’t free, but it’s definitely worth it!!! (FYI: nobody gets rich off a passive Amazon Store. I’ve been an affiliate for years, and have netted a whole 3 bucks. Somebody stop me before I go crazy with my riches! haha)
I also want to send a big shout out to Jen Kehl at Beyond Blog Design. Jen was tops at being patient with me on the delays we had in the PANDAS Sucks redesign. And she was great to answer my questions and help me get started on update I wanted for the PANDAS Sucks blog. Thank you Jen!
I will be tweaking the site and adding a few things in the weeks to come. I will be writing articles about the findings in the State of the PANDAS/PANS Community Survey y’all completed back in October. (We’ll be doing more surveys this year too!) I will be publishing new PANDAS Sucks Because… and PANDAS Silver Linings series installments. There are a few PANDAS/PANS organizations that will be featured in the Spotlight series in the next weeks. There will be new Your Words – Guest Blogs. And I have a few other topics percolating too like I always do.
Let me know what you think of “our” blog’s new look. Yes, PANDAS Sucks is my “personal” blog because I pay all the bills (whew!), but I do consider it OUR blog. The whole reason PANDAS Sucks exists is to tell our collective story about PANDAS/PANS. And f you are a PANDAS/PANS Parent or Caregiver, then YOU are part of this collective community, and the world needs to hear from you. We have quite the mission, eh? But we’re all connected. My story is your story, and your story is mine. Let’s tell the world together. Ready…1, 2, 3…GO!
This blog redesign is my gift to you. I wanted to update the look of PANDAS Sucks, make it more mobile-friendly, and provide easy access forms so everybody can participate. I truly appreciate all of your support and readership and participation for PANDAS Sucks. THANK YOU!!!
Tell us why YOU think PANDAS Sucks. Click here.
We post these reasons in a blog series.
Have YOU found a PANDAS Silver Lining? Click here.
Want to send a message to Sarah? Click here.
Sarah Jane Alleman is a PANDAS Mom to her awesome son, Jesse. She spends much of her time on Facebook, making to-do lists, and listening to music, especially Depeche Mode. She drinks a lot of coffee, likes a good red wine, and has been known to hide chocolate in her pantry. Sarah really thinks PANDAS Sucks (the autoimmune disorder, NOT the bears!). PANDAS Sucks exists to tell the collective story about PANDAS/PANS. Sarah wants to empower other PANDAS Parents and let them know they’re not alone. She is also the Director of Kentucky PANDAS/PANS Support, which strives for more awareness, support, and understanding of PANDAS/PANS. Sarah was a Parent Contributor to the book “PANDAS and PANS in School Settings.” Find PANDAS Sucks on Facebook, Instagram, Twitter, and Pinterest.
Note: Please do not ask for doctor referrals or specific medical advice. This blog/web site is for info and support purposes only. I’m not a doctor.