A few days ago, I noticed a heartwarming post in a PANDAS Parents Facebook group. A fellow PANDAS Mom, Suzanne, had shared an essay written by her 12 year old son about his hero. Ummm…HIS HERO WAS HIS MOM! Oh my goodness!!! There were 100+ Likes on the essay post and many mentions of tears and sweet sentiments shared by other PANDAS Moms. I commented on the post, “Lovely. Your son’s a lucky kid. ❤️.” I also wrote a personal message to Suzanne and told her to tell her son that if he wanted to run the essay as a PANDAS Sucks Guest Blog that I had a spot for him. Adam agreed!
I’m absolutely thrilled to bring you Adam’s sweet work. First, there’s an introduction written by Adam…then the essay. It’s a beautiful message. As you read Adam’s words, please remember something that Suzanne said in her Facebook post: “we are all heroes.” I’m pretty sure that goes for all the Parents/Caregivers and all of our kids too!
My name is Adam. I am 12 years old, in the 7th grade, and I have PANS/PANDAS. I was originally diagnosed with Tourette Syndrome when I was 6 years old. In October 2015 I had worsening tics and sudden onset OCD, hallucinations, severe separation anxiety, rage attacks, and I couldn’t leave the house for 6 months. My mom and dad never quit on me, and my mom stayed by my side sometimes all day and all night. I would never have made it out without her. I still have healing to do, but to be where I am today is not because of a miracle; it’s because of my dad, sister, and especially my mom. In English I was asked to write essay about ‘My Hero’, and this is it….
“The devil whispered in my ear, “You’re not strong enough to withstand the storm”. Today I whispered in the devils ear, “I am the storm”.” This is a quote my hero uses daily. The hero I speak of is my mother. My mother is my hero because she has motherly traits that all parents need, she perseveres for her whole family, and she is resilient, like tree leaves against a cold season. They always come back. Her loving personality and can-do attitude are what I love about her. Some people call parents annoying and bossy, but I believe that my mom is my hero.
First, we have my mother’s resilience. Ever since we found out I had more than Tourette’s syndrome, but PANDAS, it has put strain and stress on my mom. However, she pulls through. This quote, “If your heart is broken, make art with the pieces.”, is another quote my mom lives by. She bounces back from situations and makes good of it. Another example of her resilience is her being able to put up with me and now my sister’s oppositional defiant disorder, obsessive–compulsive disorder, Tourettes, anxiety, and stress. She is able to pull out of the times when we have rage attacks and crazy attacks, and make everything come back together, piece by piece.
Fortunately, my mom is a person who knows the true meaning of perseverance. The first reason for this is that she works and will not stop working to help us to fix our diseases. She stays up late, sometimes almost all night, and takes all day doing the same. Next my mother takes her day time to help us get taught when we can’t go to school. Finally, she has helped our animals stay alive multiple times. She constantly works so hard to help and achieve our old happiness. This really makes her a great mom.
Finally, my awesome hero has all of the characteristics of a smart, knowledgeable mother. First off, she knows to run a family in an ordered manner. Without her rules and teaching of things such as kindness, I would not be the person I am today. Next and finally, my mother is a kind, loving person who knows that kindness and sometimes strictness, keeps everybody happy.
My hero is an amazing woman who is resilient, persistent, and has great motherly traits. This hero is my mother. I love her so much and she is kind, loving, brave, and just plain awesome. Most kids say, “My mom is bossy”, or, “My mom is mean”, but I love my mom because she is my hero.
I want to thank Adam so very much for agreeing to share his lovely essay with all of us! I’m sure there are PANDAS/PANS Moms everywhere that need to read these words. Adam, please know that you’re helping to give hope to others because you believed and had hope…and I agree that you have one heck of a Mom! Thanks to Suzanne too. Adam IS a lucky kid! I’m wishing your entire family well on your continued healing.
Do you want to write a Guest Blog? I’m happy to provide room on PANDAS Sucks so you can share Your Words. After all, PANDAS Sucks exists to tell our collective story about PANDAS/PANS. Read more about it all here and send in the form on that page to get things started for your very own Guest Blog. Thanks!
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Sarah Jane Alleman is a PANDAS Mom to her awesome son, Jesse. She spends much of her time on Facebook, making to-do lists, and listening to music, especially Depeche Mode. She drinks a lot of coffee, likes a good red wine, and has been known to hide chocolate in her pantry. Sarah really thinks PANDAS Sucks (the autoimmune disorder, NOT the bears!). PANDAS Sucks exists to tell the collective story about PANDAS/PANS. Sarah wants to empower other PANDAS Parents and let them know they’re not alone. She is also the Director of Kentucky PANDAS/PANS Support, which strives for more awareness, support, and understanding of PANDAS/PANS. Sarah was a Parent Contributor to the book “PANDAS and PANS in School Settings.” Find PANDAS Sucks on Facebook, Instagram, Twitter, and Pinterest.
Note: Please do not ask for doctor referrals or specific medical advice. This blog/web site is for info and support purposes only. I’m not a doctor.