Yes, PANDAS Sucks, but there are some PANDAS Silver Linings and good things. Don’t you shake your head! Yes, there are!
In this series, PANDAS Silver Linings, we share life lessons, inspirational quotes or songs, recovery milestones, and smiles that have been brought to our faces. We can also give shouts out to others in the Community that help us so much when we need it. Basically, a PANDAS Silver Lining is anything that brings LIGHT to our DARK Days of PANDAS/PANS. We share these things with others to give hope, and we share them so we can still see that even though so much of PANDAS/PANS is awful, awesome things still can happen.
Are you thinking of PANDAS Silver Linings you could share? Click here and give hope and encouragements. I want to share other PANDAS Sucks Readers’ words in the newest installment of the series: PANDAS Silver Linings #4.
My PANDAS Silver Lining Is…PANDAS has shown me my children are stronger and more resilient than I ever would have known if it wasn’t for this soul crushing disease. ~SLG
My PANDAS Silver Lining Is…As he becomes a teen, I don’t have to worry about him socializing with the wrong crowd. ~Anonymous
My PANDAS Silver Lining Is…Living life with a PANDAS child makes me much less judgmental of others and more understanding of those who have children who don’t fit the “norm.” ~TM
My PANDAS Silver Lining Is…Empowerment. I have never felt so empowered in my life. Recently a PANDAS mom and I helped another PANDAS mom get urgent care for her child. I emailed our doc and I said “I need you to see this child. These are the symptoms. This is my educated guess on a diagnosis. We NEED you to see this child ASAP”. BOOM. Child was seen within a week. I never would have ever done this. I NEVER would have told a medical expert what to do or what my diagnosis thought-process was. I used to worry what others thought of I stepped outside the boundaries. I don’t care what others opinions are of my pushy-ness anymore. I am empowered to help and I will keep doing it.❤ ~Molly K
My PANDAS Silver Lining Is…That I am stronger, tougher than I ever imagined. My priorities are completely changed for the better. I have no use for small, medium and petty problems. One good day can sustain me for months. My son is amazingly strong and resilient. ~JJ
My PANDAS Silver Lining Is…That as a teacher I have learned to be more sensitive and open minded to the struggles all children may be facing. ~PANDAS Parent
My PANDAS Silver Lining Is…My daughter is stronger, braver, and more resilient than I ever could have imagined. She is a true warrior. ~Leighanne
My PANDAS Silver Lining Is…Friendships formed with other families that understand what we are going through. ~Anonymous
My PANDAS Silver Lining Is…As his mother, I have learned to take ever good moment and enjoy it to the fullest because that keeps us going in the hard times. ~Jennie
My PANDAS Silver Lining Is…As he becomes a teen, I don’t have to worry about him socializing with the wrong crowd. ~Anon
My PANDAS Silver Lining Is…Weirdly, PANS has given me more time with my daughter. She has been virtually housebound for four months, but I am grateful I can stay home with her and care for her. It’s impossibly hard, but a beautiful thing at the same time. We are lucky in so many ways. ~PANDAS Parent
My PANDAS Silver Lining Is…Solved other family health concerns with the testing and research to help PANDAS. ~Anonymous
My PANDAS Silver Lining Is…that my husband and I, after almost 11 years of marriage, many trials and tribulations, are still a good team and the best advocates for our daughter. ~TLH
My PANDAS Silver Lining Is…that sometimes I catch myself in just a normal moment when things are going okay and realize just how NORMAL it really is. My life is a lot different than many of my friends that post on Facebook about all of their kids’ accomplishments and activities they’redoing. But I know my kid is leaps and bounds above where he was at the beginning of PANDAS. We’re getting there! ~PANDAS Mom
My PANDAS Silver Lining Is…having access to so much information nowadays versus when we first started in PANDAS over six years ago. And more articles and research and awareness keep happening. I’m happy to give back by helping other parents find the help they need for their kids. And I’m honored to be friends with other Parent Advocates that are kicking butt working on legislation in their states and providing documentary screenings and doing everything that gets done to get the word out there to those that don’t know about PANDAS/PANS yet. ~Sarah
Believe me, I know there are many days when there are no Silver Linings in sight. I am not a Pollyanna trying to diminish any of the terrible stuff in PANDAS. I struggle as much as everybody else when things are crashing all around me. But as much as possible though, I do want to encourage you to try to find some good things. Even if it you only truly enjoy a piece of chocolate and a glass of wine during your evening. Or maybe some days, that first sip of coffee is Nirvana for you. So much of what PANDAS/PANS families go through SUCKS! Please take time to see when your child is making progress and when you are making progress too. Find these things on your Light Days so you can hold onto them on your Dark Days. As the writer Kurt Vonnegut said: “I urge you to please notice when you are happy, and exclaim or murmur or think at some point, ‘If this isn’t nice, I don’t know what is.'”
Thanks to everybody that participated in this Blog post. I should say that Y’all are one of MY PANDAS Silver Linings. I know I’m in great company on this journey. Thanks for the support!
Tell us why YOU think PANDAS Sucks. Click here.
Have YOU found a PANDAS Silver Lining? Click here.
Want to write a Guest Blog in YOUR WORDS? Click here.
Want to send a message to Sarah? Click here.
Sarah Jane Alleman is a PANDAS Mom to her awesome son, Jesse. She spends much of her time on Facebook, making to-do lists, and listening to music, especially Depeche Mode. She drinks a lot of coffee, likes a good red wine, and has been known to hide chocolate in her pantry. Sarah really thinks PANDAS Sucks (the autoimmune disorder, NOT the bears!). PANDAS Sucks exists to tell the collective story about PANDAS/PANS. Sarah wants to empower other PANDAS Parents and let them know they’re not alone. She is also the Director of Kentucky PANDAS/PANS Support,which strives for more awareness, support, and understanding of PANDAS/PANS. Sarah was a Parent Contributor to the book “PANDAS and PANS in School Settings.” Find PANDAS Sucks on Facebook, Instagram, Twitter, and Pinterest.
Note: Please do not ask for doctor referrals or specific medical advice. This blog/web site is for info and support purposes only. I’m not a doctor.