With PANDAS Silver Linings, we share life lessons, inspirational quotes or songs, recovery milestones, and smiles that have been brought to our faces. We can also thank others in the PANDAS/PANS Community that help us and lead us while we’re figuring all of this stuff out for our kids. Basically, a PANDAS Silver Lining is anything that brings LIGHT to our DARK Days of PANDAS/PANS. We share our PANDAS Silver Linings to show that there is hope and good things still happen. Consider it an attitude of gratitude and comfort for your spirit when things seem so bleak.
Are you thinking of PANDAS Silver Linings you could share? Have you had good stuff happening lately or something just made you smile or you want to recognize somebody that helps you? Click here and give hope and encouragements. For now here’s PANDAS Silver Linings #5:
My PANDAS Silver Lining Is…I appreciate and cherish the good days we have with our daughter so much more than I used to. I have more sympathy for others going through similar situations. ~Kimberly Rogers
My PANDAS Silver Lining Is…I can’t go out to work full-time so I see more of my kids! ~Anonymous
My PANDAS Silver Lining Is…When you are hit with something like this, it doesn’t mean you aren’t good parents. It just means that you are learning about something that no parent ever expects to have to learn about. ~KB
My PANDAS Silver Lining Is…Yesterday, I was actually relieved when my son was diagnosed with pneumonia because I knew it meant we could help him. Also, when I son was asked to leave his school by the principal, the entire class and all the parents protested and argued with the administration. They really love my son and I don’t think we would have ever know that without going through the nightmare of PANS. ~PANS Mom
My PANDAS Silver Lining Is…My kids and I are so much more aware and tolerant of people’s differences. ~MJ
My PANDAS Silver Lining Is…is that I really try to enjoy the good days and not take anything for granted because you never know what child you will wake up to tomorrow. So I play that basketball game or football game or go bike riding even if I’m too tired to play because tomorrow he could be sitting on the couch staring into space scared to breathe. ~Anon
My PANDAS Silver Lining Is…my silver linings to PANS/AE is that I am a more empathetic person with a much deeper appreciation for the simple things in life. The things that matter….which is health, happiness and family. Period. ~Mauser
My PANDAS Silver Lining Is…all of the friends I’ve made online. ~PANDAS Mom
My PANDAS Silver Lining Is…The only thing that does not suck is the other families and friends that we have made via the Internet. You know the ones that walk in the same shoes on the same path. Our marriage is stronger as we cannot give up on our son nor each other. The doctors that are listening and believing are great. The ones that did not believe will hopefully have no choice but to see that PANDAS/PANS is a real physical illness and not at all a mental health illness. Our voices are being heard and seen around the world. My Cheer squad of parents have each others backs. We are allowed to cry or say what we need in our closed group and can do that safely without judgment. Proud of those who step into the spotlight and get the media on to cover their family’s stories. My Silver lining from PANDAS is that I still have my son, he is alive after all the horrible things that have been said to him or about him by educators and medical professionals. The brain altering drugs he was given caused more harm and although I live with the guilt of not knowing… I did my homework and my husband and I spent countless hours scouring the internet for answers. WE found our PANDAS specialist, we found a great integrative doctor that ran the labs that another parent shared from Dr. T and this has saved my son’s life. We now have answers, we now have a plan that is far different from the greater majority of our PANDAS/PANS friends, but my son is slowly getting to be comfortable in his own body. He is now able to help us get him better. He is doing his own research as much of the time he cannot talk to us as the words just don’t come as fast as his thoughts. I can leave my home without fear and he is no longer taking hours to get into a car for his appointments. He finds it refreshing that our team of doctors we have today understand and believe him and are doing all they can together to help him have a better quality of life. They are no longer writing him off as a lost cause. We will never give up and I will continue to share our experiences, good and bad in hopes of helping others avoid the cracks or pit falls. P.S.-I always give them my non Doctor Mom advice or prescription….”It’s okay to cry, I recommend doing it in the shower then you can blame the red eyes on the soap.” None of us want this life for our kids, no one wants to be on Team PANDAS but we are and I appreciate all those in and on the team…old and new because I know together we can and are making a difference. No one should feel alone. ~KT
My PANDAS Silver Lining Is…I went from being worried about medicines and antibiotic therapy to realizing I will do whatever it takes to help my child. ~Anonymous
My PANDAS Silver Lining Is…I’ve become a source of information for other parents struggling with their kids. ~Anon
My PANDAS Silver Lining Is…The PANDAS/PANS community is very supportive. Let’s get those docs on the same level! ~PANDAS Mom
My PANDAS Silver Lining Is…Our three kids are doing well so others certainly can, too! Each had completely different symptoms and each time we didn’t figure out what was happening right away because of the completely different individual reactions. Each also had different protocols to get them well. But, Praise God they are all doing well today. We have believers out there in the medical community; and although that number is small I do believe that number continues to grow each day. ~Caroline H.
My PANDAS Silver Lining Is…Obviously our son has immune system issues – PANDAS has forced me to research natural supplements that will help him to be stronger and healthier in the long run. I had no knowledge of things like methylation, leaky gut, detox, etc. I do now and hopefully will help my son to get around lifelong illnesses because we are more aware. My son is stronger, more resilient, and able to deal with really negative situations — this will take him far in the future and will give him a leg up on his peers. I just hope we can get him through this so he can begin to enjoy a great quality of life that he so deserves. ~P MOM
My PANDAS Silver Lining Is…I am fluent in the languages of 504, IEP, and sarcasm now. ~PANDAS Mama
My PANDAS Silver Lining Is…My PANDAS daughter and I are extremely close because all we have been through together. ~Laurie
My PANDAS Silver Lining Is…The only small Silver Lining in this would be finally getting a diagnosis after 21 yrs of Hell. At least it has a name, it has some understanding. There have been years of nothing and induced comas to stop self-injury and dehydration. Induced comas were the only answer the doctors could come up with to keep her safe and allow her body time to reset and heal. So getting this finally diagnosed has been a blessing. ~Jacky Sullivan
My PANDAS Silver Lining Is…I connected with my child in a unique way. I opened up what I feel like now (and as a child) in order to show he is not alone. I can relate. I would have never shared those things otherwise. ~Anon
My PANDAS Silver Lining Is…My son is my silver lining…no matter what! ~JM, Kieran’s Momma
My PANDAS Silver Lining Is…I can see on a daily basis how much progress my child has made in his healing, and it gives me hope he will continue to heal. ~SJ
Thanks to everyone that participated! Have a PANDAS Silver Lining you want to share with everybody? Click here to add yours to the ongoing list we have on this site. I know it can be difficult to find the Light in the Dark Days sometimes. It’s so awesome when everybody shares to help everybody else know that they’re not alone and it DOES get better. And our PANDAS Sucks Because… series lets you get your frustrations out too. Remember, you can access the PANDAS Sucks Blog 24/7/365…rain or shine.
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Sarah Jane Alleman is a PANDAS Mom to her awesome son, Jesse. She spends much of her time on Facebook, making to-do lists, and listening to music, especially Depeche Mode. She drinks a lot of coffee, likes a good red wine, and has been known to hide chocolate in her pantry. Sarah really thinks PANDAS Sucks (the autoimmune disorder, NOT the bears!). PANDAS Sucks exists to tell the collective story about PANDAS/PANS. Sarah wants to empower other PANDAS Parents and let them know they’re not alone. She is also the Director of Kentucky PANDAS/PANS Support, which strives for more awareness, support, and understanding of PANDAS/PANS. Sarah was a Parent Contributor to the book “PANDAS and PANS in School Settings” and a volunteer and technical adviser for the PANDAS/PANS documentary “My Kid Is Not Crazy.” Find PANDAS Sucks on Facebook, Instagram, Twitter, and Pinterest.
Note: Please do not ask for doctor referrals or specific medical advice. This blog/web site is for info and support purposes only. I’m not a doctor.