Last night I got a text from a friend: “Can I text you a poem we just wrote? Maybe a PANDAS Sucks guest post.”
The “we” here is Sandra & Matt G. – PANDAS Parents Extraordinaire & now Poets too! I loved the poem, and I’m sure most PANDAS Parents/Caregivers can relate to pretty much every line of this great twist on a classic: Twas The Night Before School….
Twas the night before school and all through the house, there were PANDA bears jumping upon every couch.
The 504’s printed, with copies to spare, in hoping that this year someone would care.
The children still running, so far from their beds, the counters lined up with bottles of meds.
And mom with her wine, Dad with his nightcap, had just survived a whole summer of their crap.
When out on the lawn, there was no sign of clutter, ’cause PANDA bears hibernate with Xbox all summer.
After biting his sister his teeth he did gnash, then raged at his mom with a kick and a slash,
His mom was so tired, wanted someone to know, that her boy was so sweet not so long ago.
Then what to her bleary eyed eyes should appear, her PANDA asleep, and looking so dear.
But just as she sighed, he twitched with a tic, and she knew in a moment he was still so sick.
With multiple calls no docs never came, So she whistled and shouted and called them by name:
Please Sweedo and Murphy and doctors unseen, please help us, there must be a cause, reason, or gene.
To the labs! To the press! Before one more brawl, help us all, help us all help one and all!
Then with an awakening… mom understood, she is doing her best, and all that she could.
Clean eating, and oils and supplements too. Antibiotics, I mean, what more could she do?
With a heart full of fear, she could try homeschool? But then he would miss his friends, what should she do?
No worry for her, her friends weren’t around, too busy with kids who could handle playgrounds.
Her eyes, they still twinkled, but not from the sherry, he might be okay (but he still can’t have dairy).
Her mouth kinda curled, drawn up in a bow, her heart was so sure it really did know,
He may never be the next Machiavelli, but she’d kill if he’d eat at least one PB and jelly.
A boy who was happy, okay with himself, not letting a disease make him elf on a shelf.
She spoke not a word, but went straight to her work. So much to do but he’ll wake up a jerk.
But only as one whose a PANDAS mom knows, she would face tomorrow knowing it blows.
She will face the first day of school with one single wish, he leaves her for school with one goodbye kiss.
She’ll buck up, stay strong and try not to bristle, while she silently prays and counts down to dismissal.
Happy First Day of School!!
~Sandra & Matt G.
Here’s hoping everybody has school years worthy of LOVE poems! May your children have AWESOME first days and understanding, caring teachers!
Need to get up to speed on PANDAS/PANS and the upcoming school year? You can check out the PANDAS Sucks School Daze series here. Learn about how to talk to the school, symptom manifestations at school, PANDAS/PANS impacts on learning, real strategies from teachers & parents, and how schools can make it better.
There’s also still time to do some summer reading. Here are some great books for you or for teachers/school personnel*:
I know I’ve been a little absent from PANDAS Sucks this past year. There are good reasons for that, and I’ll write a blog about it all soon. (I have some exciting stuff happening!) I will be getting on more of a schedule with the blog. I apologize if I missed some of your emails as I had some issues with my service provider. But if you are interested in writing a guest blog, you can click here . Go here to submit your reasons for why PANDAS Sucks. Send any Silver Linings you’ve found here.
Thanks again to Sandra and Matt G. for sharing their poem with all of us. I saw on Facebook that Sandra’s first day of school drop off was a success! YAY! Wishing you all a Happy, Peaceful School Year! Hope it’s supercalifragilisticexpialidocious and definitely NOT atrocious. <3
P.S. I love this sweet song for back to school time. I listened to it while I formatted this blog post. 🙂
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Sarah Jane Alleman is a PANDAS Mom to her awesome son, Jesse. She spends much of her time on Facebook, making to-do lists, and listening to music, especially Depeche Mode. She drinks a lot of coffee, likes a good red wine, and has been known to hide chocolate in her pantry. Sarah really thinks PANDAS Sucks (the autoimmune disorder, NOT the bears!). PANDAS Sucks exists to tell the collective story about PANDAS/PANS. Sarah wants to empower other PANDAS Parents and let them know they’re not alone. She is the past Director of Kentucky PANDAS/PANS Support, and Sarah was a Parent Contributor to the book “PANDAS and PANS in School Settings.” Find PANDAS Sucks on Facebook, Instagram, Twitter, and Pinterest.
Note: Please do not ask for doctor referrals or specific medical advice. This blog/web site is for info and support purposes only. I’m not a doctor.
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