Here are a few helpful articles to help with your PANDAS/PANS research and understanding. Find more articles and information at any Google search bar near you.
LATEST PANDAS RESEARCH!!!
Group A Streptococcus intranasal infection promotes CNS infiltration by streptococcal-specific Th17 cells by Thamotharampillai Dileepan, Erica D. Smith, Daniel Knowland, Martin Hsu, Maryann Platt, Peter Bittner-Eddy,Brenda Cohen, Peter Southern, Elizabeth Latimer, Earl Harley, Dritan Agalliu, and P. Patrick Cleary [NOTE: This is the latest research on PANDAS that showed how immune cells/auto-antibodies triggered by recurrent Strep A infections enter the brain by traveling along odor-sensing neurons in the nasal cavity versus directly breaching the blood-brain-barrier (BBB).These findings could bring improved ways to diagnose, monitor, and treat PANDAS. Here is a video explaining the findings in the paper.]
Post-infectious autoimmune disorders: Sydenham’s chorea, PANDAS and beyond
by Kyle A. Williams and Susan E. Swedo [NOTE: This article appeared in a special issue of Brain Research that had an editorial commentary by Dr James Leckman and Flora M. Vaccarino : “What does immunology have to do with brain development and neuropsychiatric disorders?” Interesting stuff!]
Clinical Evaluation of Youth with Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS): Recommendations from the 2013 PANS Consensus Conference by Kiki Chang, MD;Jennifer Frankovich, MD; Michael Cooperstock, MD, MPH; Madeleine W. Cunningham, PhD; M. Elizabeth Latimer, MD; Tanya K. Murphy, MD; Mark Pasternack, MD,; Margo Thienemann, MD; Kyle Williams, MD; Jolan Walter, MD; and Susan E. Swedo, MD (From the PANS Collaborative Consortium) [NOTE: This article appeared in the JOURNAL OF CHILD AND ADOLESCENT PSYCHOPHARMACOLOGY in a special PANS/PANS edition. You can link to the rest of those JCAP articles on the Moleculera Labs web site. It’s so awesome that they are available that way! Thank You Moleculera Labs!!!]
From Research Subgroup to Clinical Syndrome: Modifying the PANDAS Criteria to Describe PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) by Susan E. Swedo, James F. Leckman, and Noel R. Rose (Landmark white paper released in early 2012 that discusses PANDAS and introduces PANS, which includes PITAND as a subset condition.)
Comparison of Clinical Characteristics of Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections and Childhood Obsessive-Compulsive Disorder by Gail A. Bernstein, M.D., Andrea M. Victor, Ph.D., Allison J. Pipal, M.A., and Kyle A. Williams, M.D.
Clinical Factors Associated with Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections by Tanya K. Murphy, M.D., Roger Kurlan, M.D., and James Leckman, M.D. (Nice article with good tables that list out symptoms and effects of PANDAS.)
Mycoplasma pneumoniae infection and obsessive-compulsive disease: a case report by Ercan TE, Ercan G, Severge B, Arpaozu M, Karasu G. (An abstract of an article released in 2007 as the first report that shows the association between Mycoplasma pneumoniae infection and obsessive-compulsive disease.)
Neurocognitive Functioning in Youth With Pediatric Autoimmune Neuropsychiatric Disorders Associated With Streptococcus by Adam B. Lewin, Ph.D., A.B.P.P; Eric A. Storch, Ph.D.; P. Jane Mutch, Ph.D; and Tanya K. Murphy, M.D. [NOTE: This is a good article to show schools how PANDAS/PANS can affect neurocognitive functioning. Nice tables.]
Pediatric Autoimmune Neuropsychiatric Disorders Associated With Streptococcal Infections: Clinical Description of the First 50 Cases by Susan E. Swedo, M.D., Henrietta L. Leonard, M.D., Marjorie Garvey, M.D., Barbara Mittleman, M.D., Albert J. Allen, M.D., Ph.D., Susan Perlmutter, M.D., Lorraine Lougee, L.C.S.W., Sara Dow, B.A., Jason Zamkoff, B.A., and Billinda K. Dubbert, M.S.N. (The article that introduced PANDAS and appeared in The American Journal of Psychiatry in February 1998.)
PANDAS and PANS: Essential Facts for Teachers by Patricia Rice Doran, Ed.D. (From the PANDAS Network site and easy to understand.)
Considerations Regarding Academic Accommodations/Compensatory Strategies, and Services for Students with PANDAS/PANS by Jamie Candelaria-Greene PhD, BCET (From the PANDAS Network site with great strategies and accommodations for schools to use with PANDAS/PANS students.)
Sudden and Severe Onset OCD – Practical Advice for Practitioners and Parents Compiled by Michael Jenike, MD and Susan Dailey, mom and advocate.
What school psychologists should know about streptococcal infections by Ashley S. Fournier
PANDAS Syndrome in the School Setting by Kathy O’Rourke, MA (An older article from 2003 published in School Nurse News that at least gives some ideas on how to handle PANDAS with schools.)