Hello! I am thrilled to bring you a special message from Anymom...the author behind the new PANS/PANDAS book: Shadow Syndromes. The subtitle of the book is "Shining a Light on PANS and Other Inflammation Based Illnesses Plaguing Today’s Youth", and that is what the book does...shines a light. It illuminates minds about PANS, PANDAS, and other conditions. The Shadow Syndromes … [Read more...]
Your Words: That Boy, Do You See Him?
While every PANDAS/PANS family experiences this medical condition differently, there are many familiar aspects that we all share. One of those things we share is how difficult it seems to be for anybody to actually see what PANDAS/PANS is doing to our kids and to our families. There is a kind of blindness when it comes to others seeing and acknowledging the effects of … [Read more...]
Your Words: Dear Everyone…. (Guest Blog by Gina)
Sometimes I'm scanning Facebook, and I see an awesome post that would make a great PANDAS Sucks Guest Blog. If I'm lucky, the person that wrote the awesome post agrees to run it on the blog. That scenario just happened over the weekend when I saw my friend Gina Jurek's post pop up in my News Feed. I read what she wrote and knew it would really resonate with a lot of folks. I … [Read more...]
Your Words: The Blue Door Fiasco (Guest Blog by Julie)
"Do you allow for guest bloggers?" I got the email last night from my new friend, Julie, a possible (probable) PANDAS Mom. I said, "Yas. Less work for me. lol." Then I told her that it really was about the same amount of work minus all the experiences and writing it. I still have to set it and wrestle with WordPress, which can be a process sometimes. Omg. Anyway, something … [Read more...]
Your Words: Where’s Joy’s Joy? by Vicki
Your Words is a PANDAS Sucks series gives you opportunities to tell your story or give commentary in YOUR WORDS. It's good to see what others are going through so you can know that you are not alone. It can be cathartic to read the guest blogs and to write them. If you want to share your story, just click here. And if you don't want to use your real name for privacy purposes, … [Read more...]
Your Words: Let’s Hear It for the Dads!
Happy Father's Day! Let's Hear it for the Dads! The PANDADs, that is. (Thanks to Marcel for somewhat coining the term PANDADs. He's a pretty cool dude and super PANDAD himself!) Today's "Your Words" PANDAS Sucks blog is dedicated to the special fellas in our lives that we Moms and other Caregivers share all of the PANDAS/PANS Pandemonium with in our day-to-day lives. It's … [Read more...]
Your Words: The PANDAS/PANS Legacy in Our Family
I'm happy to provide space on PANDAS Sucks for guest blogs. This "Your Words" is brought to you from Ali Claypoole. Ali is a PANDAS Mom who can pinpoint the day her son started asking repetitive, comfort-seeking questions (OCD). She said "a week later it was like a switch flipped, and he started washing his hands and worrying over germs." That was on a Friday, and by Monday … [Read more...]
Your Words: A PANDAS Trifecta–Billy, Carly, and Melody
***Your Words...A New Guest Blog.*** PANDAS Sucks exists to tell our collective story about PANDAS/PANS. One way we do that here is that YOU have the option to write a guest blog for the Your Words series. This newest guest blog comes from Caroline and Bill Hartenberger. It's a PANDAS Trifecta because all THREE of the Hartenberger children have PANDAS: Billy, Carly, and … [Read more...]
Your Words: My Hero (My Mom) by Adam
A few days ago, I noticed a heartwarming post in a PANDAS Parents Facebook group. A fellow PANDAS Mom, Suzanne, had shared an essay written by her 12 year old son about his hero. Ummm...HIS HERO WAS HIS MOM! Oh my goodness!!! There were 100+ Likes on the essay post and many mentions of tears and sweet sentiments shared by other PANDAS Moms. I commented on the post, "Lovely. … [Read more...]
Happy LOVE Day! PANDAS/PANS-GRAMS 2017
HAPPY VALENTINE’S DAY!!! PANDAS Sucks exists to tell our collective story about PANDAS/PANS. One thing we ALL like to talk about is how amazing our kids are. Sending Love Notes on Valentine's Day is a great way to tell the world and tell our children just how AMAZING they are. Here are the 2017 VALENTINE’S DAY PANDAS/PANS-GRAMS! Jesse, I'm so glad … [Read more...]
