This time three weeks ago, I was sitting in an Embassy Suites up in Chicago. My son Jesse had just received a third IVIG over the course of two days. I was playing on my smart phone in the front part of the hotel room. My husband was watching TV over in the bedroom. Jesse had been watching his iPad in the closet (can you tell we're a family of Introverts? LOL!). My son came … [Read more...]
Call Me
In less than half an hour now, I have a phone call with our PANDAS Specialist to try to figure out how to help my son out of his current PANDAS Flare. My husband will be home any minute/ I should be prepping for that call...instead I'm writing a blog. That tends to be how I get things done these days. Whenever I have something to do, I just do something else. If only … [Read more...]
Got Strep? Yep!!!
Got Strep? Yep!!! OMG! My PANDAS son has strep...again! Ahhhhhh!!! The sky is falling. Maybe. Maybe not. I dunno yet. After not having been diagnosed with strep throat since fall 2010, this is Jesse's second case this season! I have to tell ya that now I'm so very suspect of all those throat swabs over the years that were deemed fine. Many times they would also run a throat … [Read more...]
5 Year PANDAS-versary
Exactly five years ago today, November 18, 2010, my son, Jesse, received his first IVIG (Intravenous Immunoglobulin) to treat his PANDAS. Facebook reminded me of this 5 Year PANDAS-versary early this morning, but my brain already knew. I've had an uneasy feeling these past few days. Restless. Worried. A certain sadness. It must be the memories of this time of my life knocking … [Read more...]
Your Words: PANDAS Mom Shelby (Rowan P.’s Mom)
PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it affects our children. How it affects our families. How it affects us personally and changes us. How it affects everything. How we ALL can heal and recover. We’re all connected. My story is your story, and your story is mine. Let’s tell the world together. Ready…1, 2, 3…GO! In a previous blog, "Your … [Read more...]
Your Words: Rowan P. – 6th Grader
PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it affects our children. How it affects our families. How it affects us personally and changes us. How it affects everything. How we ALL can heal and recover. We’re all connected. My story is your story, and your story is mine. Let’s tell the world together. Ready…1, 2, 3…GO! PANDAS/PANS Parents love their … [Read more...]
Home Alone!
I'm HOME ALONE! My husband took my son, Jesse, out of town to visit his folks up in WV and will be back tomorrow evening. Can you hear that? Yeah, me neither!!! Ahhhhhh...peace and quiet. (Except our A/C is running right now...oh, it just kicked off like it knew I was talking about it. Ha ha.) You might be wondering what I will do with all of this "free" time. Cue up the Bob … [Read more...]
